Response to Daily Mail Article

It is a challenge to say the least having an invisible condition and disability. The worst thing is when society, medical teams and people around you don't believe you. The media have a role to play in this and it is deeply concerning that someone would go out of their way to call them liars.

Photo by Louis Galvez on Unsplash

To the person who wrote this article, all you have done is incite more hatred and imply people make their symptoms up. So here are some things you got wrong in your article.

Spoonies- This is a term for people who use the spoon theory, to identify how many spoons (energy) they have in a day. For example someone could have 12 spoons or 24, and it could take 3 spoons to have a shower, or 5 spoons to walk to a friends house or the supermarket. The term spoonies has nothing to do with making it up.

Recording yourself- This is often a method used to build evidence of how bad the symptoms are especially for those who don't understand, need extra proof and to help raise awareness to those who may lack knowledge. Hence why there may be a few people on TikTok who share their experiences.

There were minors used in that article and they are clearly ill and have symptoms, but the unfortunate thing is they were not approached for the article it was just something put together. Just because you can't see an illness nor understand the symptom doesn't give you the right to take away the pain of others.

I hope one day society can be kinder to one another, but those divisive articles do the very opposite.

Written by: Shehla Ali

***Views my own***